This three-year patient-focused research project, commissioned by the Healing Foundation, conducted by the Picker Institute, and funded by the GUS Charitable Trust studied the information needs of people with disfiguring conditions. The impact of a disfigurement can be enormous and life-changing, and alongside any accompanying physical obstacles, adapting psychologically and socially to a change in appearance is often one of the most difficult aspects of rehabilitation and recovery. The detailed findings of the study can be accessed below.

If you would like more information please click on the links below to download the full interim report and the fact sheet or visit The Picker Institute Website.

The study produced four main reports, of which the “Overview and Summary” contains further details on the key findings and recommendations. Please click on the images below to download the reports.